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Autor
Aberer, Elisabeth 1 Al-Ali, Haifa Kathrin 1 Arock, Michel 1 Bonadonna, Patrizia 1 Bonifacio, Massimiliano 1 Brockow, Knut 1 Caroppo, Francesca 1 David Fuchs 1 Doubek, Michael 1 Elena, Chiara 1 Fortina, Anna Belloni 1 Gleixner, Karoline V 1 Gorska, Aleksandra 1 Gotlib, Jason 1 Greul, Rosemarie 1 Hadzijusufovic, Emir 1 Hagglund, Hans 1 Hartmann, Karin 1 Hermine, Olivier 1 Illerhaus, Anja 1
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Pracoviště
Allergy Unit Verona University Hospit... 1 Department of Allergology Medical Uni... 1 Department of Allergology University ... 1 Department of Companion Animals and H... 1 Department of Dermatology University ... 1 Department of Dermatology University ... 1 Department of Dermatology University ... 1 Department of Dermatology Venereology... 1 Department of Dermatology and Allergy... 1 Department of Dermatology and Venereo... 1 Department of Hematology Oncology and... 1 Department of Hematology Semmelweis U... 1 Department of Hematology University M... 1 Department of Hematology Uppsala Univ... 1 Department of Internal Medicine 1 Div... 1 Department of Internal Medicine 3 Hem... 1 Department of Molecular Medicine and ... 1 Department of Oncology Haematology Ha... 1 Division of Allergy and Clinical Immu... 1 Division of Hematology Department of ... 1
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- Zeměpisné označení
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Autor
Aberer, Elisabeth 1 Al-Ali, Haifa Kathrin 1 Arock, Michel 1 Bonadonna, Patrizia 1 Bonifacio, Massimiliano 1 Brockow, Knut 1 Caroppo, Francesca 1 David Fuchs 1 Doubek, Michael 1 Elena, Chiara 1 Fortina, Anna Belloni 1 Gleixner, Karoline V 1 Gorska, Aleksandra 1 Gotlib, Jason 1 Greul, Rosemarie 1 Hadzijusufovic, Emir 1 Hagglund, Hans 1 Hartmann, Karin 1 Hermine, Olivier 1 Illerhaus, Anja 1
- Organizace
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Pracoviště
Allergy Unit Verona University Hospit... 1 Department of Allergology Medical Uni... 1 Department of Allergology University ... 1 Department of Companion Animals and H... 1 Department of Dermatology University ... 1 Department of Dermatology University ... 1 Department of Dermatology University ... 1 Department of Dermatology Venereology... 1 Department of Dermatology and Allergy... 1 Department of Dermatology and Venereo... 1 Department of Hematology Oncology and... 1 Department of Hematology Semmelweis U... 1 Department of Hematology University M... 1 Department of Hematology Uppsala Univ... 1 Department of Internal Medicine 1 Div... 1 Department of Internal Medicine 3 Hem... 1 Department of Molecular Medicine and ... 1 Department of Oncology Haematology Ha... 1 Division of Allergy and Clinical Immu... 1 Division of Hematology Department of ... 1
- Formát
- Publikační typ
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- Kategorie
- Zeměpisné označení
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- Časopis/zdroj
- Vlastník
- Valent, Peter
- Oude Elberink, Joanna N G
- Gorska, Aleksandra
- Lange, Magdalena
- Zanotti, Roberta
- van Anrooij, Björn
- Bonifacio, Massimiliano
- Bonadonna, Patrizia
- Gleixner, Karoline V
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Hadzijusufovic, Emir
Autor Hadzijusufovic, Emir Department of Internal Medicine I, Division of Hematology and Hemostaseology, Medical University of Vienna, Vienna, Austria Ludwig Boltzmann Institute for Hematology & Oncology, Medical University of Vienna, Vienna, Austria Department of Companion Animals and Horses, Clinic for Internal Medicine and Infectious Diseases, University of Veterinary Medicine Vienna, Vienna, Austria
Mastocytosis is a unique hematologic neoplasm with complex biology and pathology and a variable clinical course. The disease can essentially be divided into cutaneous mastocytosis (CM) and systemic mastocytosis (SM). In adults, SM is diagnosed in most cases and manifests as either indolent or advanced disease. Patients with advanced SM have an unfavorable prognosis with reduced survival. However, so far, little is known about the prevalence of various categories of SM and about prognostic factors. In an attempt to learn more about the behavior and evolution of various forms of CM and SM, the European Competence Network on Mastocytosis (ECNM) initiated a mastocytosis registry in 2012. In this article, the set up and start phase of this registry are described. Until 2018, more than 3000 patients from 12 countries and 25 centers have been enrolled. In a majority of all patients, robust follow-up data and relevant clinical end points are available. Using this data set, a series of registry projects have been launched, with the aim to validate previously identified diagnostic and prognostic variables and to identify new disease-related and patient-related parameters in various forms of mastocytosis. Moreover, the core data set of the registry will be useful to establish multiparametric scoring systems through which prognostication and individualized management of patients with mastocytosis should improve in the foreseeable future.
- MeSH
- individualizovaná medicína MeSH
- informační služby * MeSH
- lidé MeSH
- mastocytóza diagnóza epidemiologie MeSH
- mezinárodní spolupráce MeSH
- prognóza MeSH
- registrace * MeSH
- riziko MeSH
- Světová zdravotnická organizace MeSH
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- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- multicentrická studie MeSH
- práce podpořená grantem MeSH
- přehledy MeSH
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