OBJECTIVES: The article focuses on main topics related to disease, death, and dying in communication between parents and their adolescent children with this diagnosis. METHODS: We conducted qualitative research comprising 13 interviews with parents who lost their adolescent child to cancer. We used a semi-structured interview and interpretative phenomenological analysis. RESULTS: Results introduced 6 basic topics: mutual protection, openness in the communication about cancer and death, making treatment decisions together, talks at the time of passing, hope, and spiritual experience. CONCLUSION: Adolescents appreciate age-appropriate, open communication about their disease. Talking about the disease and its prognosis appears to be the way from mutual protection to open truthfulness. Openness also includes the participation of adolescents in further treatment. For some parents, it makes sense to constantly protect the child from the fact of death. Caregivers should support discussions about death between parents and their terminally ill adolescent children and accept individual decisions to talk about death (Tab. 1, Ref. 25).
- MeSH
- dospělí MeSH
- komunikace * MeSH
- kvalitativní výzkum MeSH
- láska MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladiství MeSH
- mladý dospělý MeSH
- nádory psychologie MeSH
- rozhovory jako téma MeSH
- spiritualita MeSH
- umírající * psychologie MeSH
- vztahy mezi rodiči a dětmi MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladiství MeSH
- mladý dospělý MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
Autizmus je pervazívna vývinová porucha s prejavom už v útlom veku, ktorú charakterizuje sociálny deficit, poruchy komunikácie a stereotypné správanie. Ochorenie má veľkú variabilitu príznakov a nejasnú heterogénnu etiológiu. Všeobecne sa však vyskytuje štyrikrát častejšie u osôb mužského pohlavia, čo dáva priestor pre teórie naznačujúce súvislosť autizmu s účinkom testosterónu. Teória hypermužského mozgu u autistov predpokladá poruchu vývinu neurónov s následnou zmenou morfológie mozgových štruktúr a atypický rozvoj mozgových hemisfér s dopadom na autistický fenotyp.
Autism is a complex pervasive developmental disorder with early childhood onset characterized by social deficits, impaired communication and stereotyped behaviour. The disorder has increasing prevalence, enormous variability of symptoms and unknown etiology. Generally the disorder is diagnosed four times more often in boys than in girls and this provokes theories relating autism to testosterone effect. The theory of hypermale brain considers disturbed neurodevelopment with consequent structural brain anomalies and atypical development of brain hemispheres leading to autistic phenotype.
