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Perspectives of healthcare providers, service users, and family members about mental illness stigma in primary care settings: A multi-site qualitative study of seven countries in Africa, Asia, and Europe

M. Koschorke, N. Oexle, U. Ouali, AV. Cherian, V. Deepika, GB. Mendon, D. Gurung, L. Kondratova, M. Muller, M. Lanfredi, A. Lasalvia, A. Bodrogi, A. Nyulászi, M. Tomasini, R. El Chammay, R. Abi Hana, Y. Zgueb, F. Nacef, E. Heim, A. Aeschlimann,...

. 2021 ; 16 (10) : e0258729. [pub] 20211027

Language English Country United States

Document type Comparative Study, Journal Article, Multicenter Study, Research Support, N.I.H., Extramural, Research Support, Non-U.S. Gov't

Grant support
K01 MH104310 NIMH NIH HHS - United States
R21 MH111280 NIMH NIH HHS - United States
R01 MH100470 NIMH NIH HHS - United States
MR/S001255/1 Medical Research Council - United Kingdom
MR/R023697/1 Medical Research Council - United Kingdom
Department of Health - United Kingdom

BACKGROUND: Stigma among healthcare providers is a barrier to the effective delivery of mental health services in primary care. Few studies have been conducted in primary care settings comparing the attitudes of healthcare providers and experiences of people with mental illness who are service users in those facilities. Such research is necessary across diverse global settings to characterize stigma and inform effective stigma reduction. METHODS: Qualitative research was conducted on mental illness stigma in primary care settings in one low-income country (Nepal), two lower-middle income countries (India, Tunisia), one upper-middle-income country (Lebanon), and three high-income countries (Czech Republic, Hungary, Italy). Qualitative interviews were conducted with 248 participants: 64 primary care providers, 11 primary care facility managers, 111 people with mental illness, and 60 family members of people with mental illness. Data were analyzed using framework analysis. RESULTS: Primary care providers endorsed some willingness to help persons with mental illness but reported not having appropriate training and supervision to deliver mental healthcare. They expressed that people with mental illness are aggressive and unpredictable. Some reported that mental illness is incurable, and mental healthcare is burdensome and leads to burnout. They preferred mental healthcare to be delivered by specialists. Service users did not report high levels of discrimination from primary care providers; however, they had limited expectations of support from primary care providers. Service users reported internalized stigma and discrimination from family and community members. Providers and service users reported unreliable psychiatric medication supply and lack of facilities for confidential consultations. Limitations of the study include conducting qualitative interviews in clinical settings and reliance on clinician-researchers in some sites to conduct interviews, which potentially biases respondents to present attitudes and experiences about primary care services in a positive manner. CONCLUSIONS: Primary care providers' willingness to interact with people with mental illness and receive more training presents an opportunity to address stigmatizing beliefs and stereotypes. This study also raises important methodological questions about the most appropriate strategies to accurately understand attitudes and experiences of people with mental illness. Recommendations are provided for future qualitative research about stigma, such as qualitative interviewing by non-clinical personnel, involving non-clinical staff for recruitment of participants, conducting interviews in non-clinical settings, and partnering with people with mental illness to facilitate qualitative data collection and analysis.

Awakenings Foundation Budapest Budapest Hungary

Centre for Global Mental Health Institute of Psychiatry Psychology and Neuroscience King's College London London United Kingdom

Centre for Implementation Science Institute of Psychiatry Psychology and Neuroscience King's College London London United Kingdom

Department for Psychiatry 2 Ulm University and BKH Günzburg Günzburg Germany

Department of Clinical Neuro and Developmental Psychology Vrije Universiteit Amsterdam The Netherlands

Department of Epidemiology Centre for Public Health National Institute of Mental Health and Neurosciences Bengaluru India

Department of Mental Health Alto Garda e Ledro Giudicarie Arco Italy

Department of Psychiatric Social Work National Institute of Mental Health and Neurosciences Bengaluru India

Department of Psychiatry A Razi Hospital La Manouba Manouba Tunisia

Department of Psychiatry Saint Joseph University Beirut Lebanon

Department of Psychology University of Zurich Zurich Switzerland

Department of Public Mental Health National Institute of Mental Health Klecany Czechia

Division of Global Mental Health Department of Psychiatry George Washington University Washington DC United States of America

Faculty of Medicine of Tunis University of Tunis El Manar Tunis Tunisia

Implemental Worldwide London United Kingdom

Institute of Population Health Sciences University of Liverpool Liverpool United Kingdom

Institute of Psychology University of Lausanne Lausanne Switzerland

National Mental Health Programme Ministry of Public Health Beirut Lebanon

Section of Psychiatry Department of Neuroscience Biomedicine and Movement Sciences University of Verona Verona Italy

Transcultural Psychosocial Organization Nepal Kathmandu Nepal

Unit of Psychiatry IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli Brescia Italy

References provided by Crossref.org

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