Health-endangering everyday settings and practices in a rural segregated Roma settlement in Slovakia: A descriptive summary from an exploratory longitudinal case study
Language English Country Great Britain, England Media electronic
Document type Journal Article
PubMed
28129754
PubMed Central
PMC5273804
DOI
10.1186/s12889-017-4029-x
PII: 10.1186/s12889-017-4029-x
Knihovny.cz E-resources
- Keywords
- Ethnography, Health inequality, Public health, Roma health, Slovakia, Social determinants of health,
- MeSH
- Residence Characteristics MeSH
- Humans MeSH
- Longitudinal Studies MeSH
- Cross-Sectional Studies MeSH
- Roma statistics & numerical data MeSH
- Social Segregation MeSH
- Social Class MeSH
- Rural Population statistics & numerical data MeSH
- Health Behavior ethnology MeSH
- Health Status * MeSH
- Life Style MeSH
- Check Tag
- Humans MeSH
- Male MeSH
- Female MeSH
- Publication type
- Journal Article MeSH
- Geographicals
- Slovakia MeSH
BACKGROUND: Research into social root-causes of poor health within segregated Roma communities in Central and Eastern Europe, i.e. research into how, why and by whom high health-endangering settings and exposures are maintained here, is lacking. The aim of this study was to assess the local setup of health-endangering everyday settings and practices over the long-term in one such community. It is the initial part of a larger longitudinal study qualitatively exploring the social root-causes of poor Roma health status through the case of a particular settlement in Slovakia. METHODS: The study, spanning 10 years, comprised four methodologically distinct phases combining ethnography and applied medical-anthropological surveying. The acquired data consisted of field notes on participant observations and records of elicitations focusing on both the setup and the social root-causes of local everyday health-endangering settings and practices. To create the here-presented descriptive summary of the local setup, we performed a qualitative content analysis based on the latest World Health Organization classification of health exposures. RESULTS: Across all the examined dimensions - material circumstances, psychosocial factors, health-related behaviours, social cohesion and healthcare utilization - all the settlements' residents faced a wide range of health-endangering settings and practices. How the residents engaged in some of these exposures and how these exposures affected residents' health varied according to local social stratifications. Most of the patterns described prevailed over the 10-year period. Some local health-endangering settings and practices were praised by most inhabitants using racialized ethnic terms constructed in contrast or in direct opposition to alleged non-Roma norms and ways. CONCLUSIONS: Our summary provides a comprehensive and conveniently structured basis for grounded thinking about the intermediary social determinants of health within segregated Roma communities in Slovakia and beyond. It offers novel clues regarding how certain determinants might vary therein; how they might be contributing to health-deterioration; and how they might be causally inter-linked here. It also suggests racialized ethnically framed social counter-norms might be involved in the maintenance of analogous exposure setups.
Department of General Anthropology Faculty of Humanities Charles University Prague Czech Republic
Kosice Institute for Society and Health Faculty of Medicine P J Safarik University Kosice Slovakia
Olomouc University Society and Health Institute Palacky University Olomouc Olomouc Czech Republic
See more in PubMed
Marushiakova E, Popov V. Historical and ethnographic background: Gypsies, Roma, Sinti. In: Guy W, editor. Between past and future : the Roma of Central and Eastern Europe. Hertfordshire: University of Hertfordshire Press; 2001. pp. 33–53.
Stewart M. Introduction. In: Stewart M, Rövid M, editors. Multi-disciplinary approaches to Romany Studies. Budapest: Central European University Press (e-book); 2011. p. 1-12.
Iovita RP, Schurr TG. Reconstructing the Origins and Migrations of Diasporic Populations: The Case of the European Gypsies. Am Anthropol. 2004;106(2):267–81. doi: 10.1525/aa.2004.106.2.267. DOI
Matras Y. Romani: a linguistic introduction. Cambridge: Cambridge University Press; 2002.
Bakker P. Romani genetic linguistics and genetics: Results, prospects and problems. Romani Stud. 2012;22(2):91–111. doi: 10.3828/rs.2012.6. DOI
Tcherenkov L, Laederich S. The Rroma: otherwise known as Gypsies, Gitanos, Gyphtoi, Tsiganes, Tigani, Çingene, Zigeuner, Bohémiens, Travellers, Fahrende. Basel: Schwabe; 2004.
Martinez-Cruz B, Mendizabal I, Harmant C, de Pablo R, Ioana M, Angelicheva D, et al. Origins, admixture and founder lineages in European Roma. Eur J Hum Genet. 2016;24(6):937–43. doi: 10.1038/ejhg.2015.201. PubMed DOI PMC
EUC . The Situation of Roma in an Enlarged European Union. Luxembourg: European Commission - Directorate-General for Employment and Social Affairs; 2004.
FRAEU, UNDP . The situation of Roma in 11 EU Member States. Survey results at a glance. Luxembourg: European Union Agency for Fundamental Rights & UNDP; 2012.
EUC. Roma Health Report. Health status of the Roma population. Data collection in the Member States of the European Union 2014.
Fraser AM. The Peoples of Europe. 2. Oxford, UK; Cambridge, USA: Blackwell; 1995. The gypsies.
Selling J, End M, Kiuchukov K, Laskar P, Templer B. Antiziganism: What’s in a Word?: Proceedings from the Uppsala International Conference on the Discrimination, Marginalization and Persecution of Roma, 23-25 October 2013. Cambridge Scholars Publishing; 2015.
Stewart M. The Gypsy menace: Populism and the new anti-Gypsy politics. London: Hurst & Company; 2012.
Gmelch SB. Groups that don't want in: Gypsies and other artisan, trader, and entertainer minorities. Annu Rev Anthropol. 1986;15(Oct):307–30. doi: 10.1146/annurev.an.15.100186.001515. DOI
MacLaughlin J. European Gypsies and the Historical Geography of Loathing. Rev (Fernand Braudel Center) 1999;22(1):31–59.
Stewart M. Roma and Gypsy “ethnicity” as a subject of anthropological inquiry. Annu Rev Anthropol. 2013;42(1):415–32. doi: 10.1146/annurev-anthro-092010-153348. DOI
Hajioff S, McKee M. The health of the Roma people: a review of the published literature. J Epidemiol Community Health. 2000;54(11):864–9. doi: 10.1136/jech.54.11.864. PubMed DOI PMC
Cook B, Wayne GF, Valentine A, Lessios A, Yeh E. Revisiting the evidence on health and health care disparities among the Roma: a systematic review 2003–2012. Int J Public Health. 2003;2013:1–27. PubMed
Filadelfiova J, Gerbery D. Report on the Living Conditions of Roma households in Slovakia 2010. Bratislava: UNDP; 2012.
Filadelfiova J, Gerbery D, Skobla D. Report on the living conditions of Roma in Slovakia. United Nations Development Programme: Regional Bureau for Europe and the Commonwealth of Independent States. 2007.
Rosicova K, Madarasova Geckova A, van Dijk JP, Kollarova J, Rosic M, Groothoff JW. Regional socioeconomic indicators and ethnicity as predictors of regional infant mortality rate in Slovakia. Int J Public Health. 2011;56(5):523–31. doi: 10.1007/s00038-010-0199-3. PubMed DOI PMC
Rosenberger J, Majernikova M, Jarcuska P, Pella D, Marekova M, Geckova AM, et al. Higher prevalence of nephropathy in young Roma females compared with non-Roma females. Cent Eur J Public Health. 2014;22:S28–31. doi: 10.21101/cejph.a3898. PubMed DOI
Hasajova A, Valencakova A, Malcekova B, Danisova O, Halan M, Goldova M, et al. Significantly higher occurrence of Cryptosporidium infection in Roma children compared with non-Roma children in Slovakia. Eur J Clin Microbiol Infect Dis. 2014;33(8):1401–6. doi: 10.1007/s10096-014-2082-2. PubMed DOI
Kolvek G, Rosicova K, Rosenberger J, Podracka L, Stewart R, Nagyova I, et al. End-stage renal disease among Roma and non-Roma: Roma are at risk. Int J Public Health. 2012;57(4):751–4. doi: 10.1007/s00038-012-0365-x. PubMed DOI
Kristian P, Veselska ZD, Paralicova Z, Jarcuska P, Virag L, Valkova I, et al. Regional and ethnic aspects of viral hepatitis B among pregnant women. Cent Eur J Public Health. 2013;21(1):22–5. PubMed
Rudohradska P, Halanova M, Ravaszova P, Goldova M, Valencakova A, Halan M, et al. Prevalence of intestinal parasites in children from minority group with low hygienic standards in Slovakia. Helminthologia. 2012;49(2):63–6. doi: 10.2478/s11687-012-0013-2. DOI
Sudzinova A, Nagyova I, Studencan M, Rosenberger J, Skodova Z, Vargova H, et al. Roma coronary heart disease patients have more medical risk factors and greater severity of coronary heart disease than non-Roma. Int J Public Health. 2013;58(3):409–15. doi: 10.1007/s00038-013-0462-5. PubMed DOI
Babinska I, Geckova AM, Jarcuska P, Pella D, Marekova M, Stefkova G, et al. Does the population living in Roma settlements differ in physical activity, smoking and alcohol consumption from the majority population in Slovakia? Cent Eur J Public Health. 2014;22:S22–7. doi: 10.21101/cejph.a3897. PubMed DOI
Babinska I, Veselska ZD, Bobakova D, Pella D, Panico S, Reijneveld SA, et al. Is the cardiovascular risk profile of people living in Roma settlements worse in comparison with the majority population in Slovakia? Int J Public Health. 2013;58(3):417–25. doi: 10.1007/s00038-013-0463-4. PubMed DOI
Hijova E, Geckova AM, Babinska I. HepaMeta. Do eating habits of the population living in Roma settlements differ from those of the majority population in Slovakia? Cent Eur J Public Health. 2014;22:S65–8. doi: 10.21101/cejph.a3797. PubMed DOI
Jarcuska P, Bobakova D, Uhrin J, Bobak L, Babinska I, Kolarcik P, et al. Are barriers in accessing health services in the Roma population associated with worse health status among Roma? Int J Public Health. 2013;58(3):427–34. doi: 10.1007/s00038-013-0451-8. PubMed DOI
Vazan P, Khan MR, Poduska O, Stastna L, Miovsky M. Chronic Toluene misuse among Roma youth in Eastern Slovakia. Subst Use Misuse. 2011;46(s1):57–61. doi: 10.3109/10826084.2011.580213. PubMed DOI PMC
Berkesova M, Sidlovska M, Petrovicova I, Pilka T, Kolena B. Biomonitoring of Mono (2-Ethylhexyl) Phthalate and Mono-N-Butyl Phthalate in Roma Children in Slovakia. J Educ Soc Res. 2014;4(4):115.
Kolarcik P, Geckova AM, Orosova O, van Dijk JP, Reijneveld SA. Predictors of health-endangering behaviour among Roma and non-Roma adolescents in Slovakia by gender. J Epidemiol Community Health. 2010;64(12):1043–8. doi: 10.1136/jech.2009.092098. PubMed DOI
Halanova M, Jarcuska P, Kalinova Z, Carikova K, Oravcova J, Jarcuska P, et al. The prevalence of Chlamydia trachomatis in the population living in Roma settlements: a comparison with the majority population. Cent Eur J Public Health. 2014;22:S32–6. doi: 10.21101/cejph.a3899. PubMed DOI
Bobakova D, Kolarcik P, Geckova AM, Klein D, Reijneveld SA, van Dijk JP. Does the influence of peers and parents on adolescents' drunkenness differ between Roma and non-Roma adolescents in Slovakia? Ethn Health. 2012;17(5):531–41. doi: 10.1080/13557858.2012.678305. PubMed DOI
Kolarcik P, Geckova AM, Reijneveld S, van Dijk J. Social support, hopelessness and life satisfaction among Roma and non-Roma adolescents in Slovakia. Int J Public Health. 2012;57(6):905–13. doi: 10.1007/s00038-012-0413-6. PubMed DOI
Bobakova D, Dankulincova Veselska Z, Babinska I, Klein D, Madarasova Geckova A, Cislakova L, et al. Differences between Roma and non-Roma in how social support from family and friends helps to overcome health care accessibility problems. Int J Equity Health. 2015;14(1):37. doi: 10.1186/s12939-015-0165-z. PubMed DOI PMC
Krieger N. Epidemiology and the people's health: theory and context. New York: Oxford University Press; 2011.
Marmot MG, Wilkinson RG. Social determinants of health. 2. Oxford, New York: Oxford University Press; 2006.
Dressler WW, Oths KS, Gravlee CC. Race and ethnicity in public health research: Models to explain health disparities. Annu Rev Anthropol. 2005;34(Oct):231–52. doi: 10.1146/annurev.anthro.34.081804.120505. DOI
Fésüs G, Östlin P, McKee M, Ádány R. Policies to improve the health and well-being of Roma people: The European experience. Health Policy. 2012;105(1):25–32. doi: 10.1016/j.healthpol.2011.12.003. PubMed DOI
Reijneveld S. Ethnic differences in health and use of health care: the questions to be answered. Int J Public Health. 2010;55(5):353–5. doi: 10.1007/s00038-010-0189-5. PubMed DOI PMC
Krieger N. Embodiment: a conceptual glossary for epidemiology. J Epidemiol Community Health. 2005;59(5):350–5. doi: 10.1136/jech.2004.024562. PubMed DOI PMC
WHO . A conceptual framework for action on the social determinants of health. Geneva: World Health Organization; 2010.
Frohlich KL, Corin E, Potvin L. A theoretical proposal for the relationship between context and disease. Soc Health Illn. 2001;23(6):776–97. doi: 10.1111/1467-9566.00275. DOI
Popay J, Williams G, Thomas C, Gatrell T. Theorising inequalities in health: the place of lay knowledge. Sociology Health Illn. 1998;20(5):619–44. doi: 10.1111/1467-9566.00122. DOI
Dressler WW. What's Cultural about Biocultural Research? Ethos. 2005;33:20–45. doi: 10.1525/eth.2005.33.1.020. DOI
Trostle JA. Epidemiology and culture. Cambridge studies in medical anthropology, vol 13. Cambridge, UK. New York: Cambridge University Press; 2004.
Flyvbjerg B. Five misunderstandings about case-study research. Qual Inq. 2006;12(2):219–45. doi: 10.1177/1077800405284363. DOI
Hammersley M, Atkinson P. Ethnography: principles in practice. 3. London, New York: Routledge; 2007.
Reeves S, Kuper A, Hodges BD. Qualitative research methodologies: ethnography. BMJ. 2008;337:a1020. doi: 10.1136/bmj.a1020. PubMed DOI
Hausmann-Muela S, Muela Ribera J, Nyamongo I. Health-seeking behaviour and the health system response. DCPP Working Paper No. 14 Diseas Control Priorities Project 2003.
Pelto PJ, Pelto GH. Studying knowledge, culture, and behavior in applied medical anthropology. Med Anthropol Q. 1997;11(2):147–63. doi: 10.1525/maq.1997.11.2.147. PubMed DOI
Sasinka, Nyulassy, Badalik. Vademecum medici. 6 ed. Vademecum medici. Martin: Osveta; 2003.
Musinka A, Skobla D, Hurrle J, Matlovicova K, Kling J. Atlas of Roma communities in Slovakia 2013 [Atlas rómskych komunít na Slovensku 2013] Bratislava: UNDP; 2014.
Scheffel DZ. Slovak Roma on the threshold of Europe. Anthropol Today. 2004;20:6–12. doi: 10.1111/j.0268-540X.2004.00246.x. DOI
Kobes T. Fajta a povaha příbuzenství obyvatel východoslovenských romských osad [Fajta and the nature of kinship among the inhabitants of Roma settlements in Eastern Slovakia] Sociologický časopis/Czech Sociological Review. 2010;02:235–55.
Kleinman A. Patients and healers in the context of culture : an exploration of the borderland between anthropology, medicine, and psychiatry. Comparative studies of health systems and medical care, vol no 3. Berkeley: University of California Press; 1980.
Kleinman A, Benson P. Anthropology in the Clinic: The Problem of Cultural Competency and How to Fix It. PLoS Med. 2006;3(10):e294. doi: 10.1371/journal.pmed.0030294. PubMed DOI PMC
LeCompte MD, Schensul JJ. Analysis and interpretation of ethnographic data: a mixed methods approach. 2nd ed. Ethnographer's toolkit, vol Book 5. Lanham: AltaMira Press; 2013.
Davidova E, Elichova M, Ivanova K, Kajanova A, Matulay S, Matulayova E, et al. Kvalita života a sociální determinanty zdraví u Romů v České a Slovenské republice [Quality of life and social determinants of health in Roma in the Czech Republic and Slovakia] Ceske Budejovice: Triton; 2010.
Kelly JA, Amirkhanian YA, Kabakchieva E, Csepe P, Seal DW, Antonova R, et al. Gender roles and HIV sexual risk vulnerability of Roma (Gypsies) men and women in Bulgaria and Hungary: an ethnographic study. AIDS Care. 2004;16(2):231–45. doi: 10.1080/09540120410001641075. PubMed DOI
Colombini M, Rechel B, Mayhew SH. Access of Roma to sexual and reproductive health services: Qualitative findings from Albania, Bulgaria and Macedonia. Global Public Health. 2011;7(5):522–34. doi: 10.1080/17441692.2011.641990. PubMed DOI
Geckova AM, Babinska I, Bobakova D, Veselska ZD, Bosakova L, Kolarcik P, et al. Socioeconomic characteristics of the population living in Roma settlements and their association with health and health-related behaviour. Cent Eur J Public Health. 2014;22:S57–64. doi: 10.21101/cejph.a3903. PubMed DOI
Földes ME, Covaci A. Research on Roma health and access to healthcare: state of the art and future challenges. Int J Public Health. 2012;57(1):37–9. doi: 10.1007/s00038-011-0312-2. PubMed DOI PMC
Barany ZD. The East European gypsies: regime change, marginality, and ethnopolitics. Cambridge. New York: Cambridge University Press; 2002.
Kolarcik P, Geckova AM, Orosova O, van Dijk JP, Reijneveld SA. To what extent does socioeconomic status explain differences in health between Roma and non-Roma adolescents in Slovakia? Soc Sci Med. 2009;68(7):1279–84. doi: 10.1016/j.socscimed.2008.12.044. PubMed DOI
Voko Z, Csepe P, Nemeth R, Kosa K, Kosa Z, Szeles G, et al. Does socioeconomic status fully mediate the effect of ethnicity on the health of Roma people in Hungary? J Epidemiol Community Health. 2009;63(6):455–60. doi: 10.1136/jech.2008.079715. PubMed DOI
Janevic T, Jankovic J, Bradley E. Socioeconomic position, gender, and inequalities in self-rated health between Roma and non-Roma in Serbia. Int J Public Health. 2012;57(1):49–55. doi: 10.1007/s00038-011-0277-1. PubMed DOI
Okely J. The traveller-gypsies. Changing cultures. Cambridge, New York: Cambridge University Press; 1983.
Stewart M. The time of the gypsies. Studies in the ethnographic imagination. Boulder, Colorado: Westview Press; 1997.
Tauber E. Du wirst keinen Ehemann nehmen!: Respekt, die Bedeutung der Toten und Fluchtheirat bei den Sinti Estraixaria [You will not take a husband! Flight marriage and significance of the dead among Sinti Estraixaria]. LIT Verlag Münster; 2006.
Engebrigtsen AI. Exploring Gypsiness: power, exchange and interdependence in a Transylvanian village. New York: Berghahn Books; 2007.
Gay Y, Blasco P. Gypsies in Madrid : Sex, Gender and the Performance of Identity. Oxford: Berg Publishers; 1999.
Van Cleemput P, Parry G, Thomas K, Peters J, Cooper C. Health-related beliefs and experiences of Gypsies and Travellers: a qualitative study. J Epidemiol Community Health. 2007;61(3):205–10. doi: 10.1136/jech.2006.046078. PubMed DOI PMC
Jesper E, Griffiths F, Smith L. A qualitative study of the health experience of Gypsy Travellers in the UK with a focus on terminal illness. Primary Health Care Res Dev. 2008;9(02):157–65. doi: 10.1017/S1463423608000613. DOI
Skupnik J. Světy se zrcadlem. Marginalizace a integrace z hlediska sociopsychologické dynamiky společnosti [Reflected worlds: Marginalisation and integration from the perspective of the socio-psychological dynamics of society] Sociologický časopis/Czech Sociological Review. 2007;01:133–47.
Podolinska T, Hrustic T, editors. Čierno-biele svety. Rómovia v majoritnej spoločnosti na Slovensku [Black and white worlds. Roma amongst the majority population in Slovakia] Bratislava: VEDA; 2014.
To Comply or Not to Comply: Roma Approach to Health Laws
Juvenile Idiopathic Arthritis: Roma Children Seem to Run More Risk than Non-Roma
What Roma nonadherence is likely and what drives it? Reply to Broz and Nunes
Challenges for research, policy and practice in the field of Roma health
Roma Housing and Eating in 1775 and 2013: A Comparison