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Health care and patients' education in a European inflammatory bowel disease inception cohort: an ECCO-EpiCom study
J. Burisch, Z. Vegh, N. Pedersen, S. Cuković-Čavka, N. Turk, I. Kaimakliotis, D. Duricova, M. Bortlik, O. Shonová, N. Thorsgaard, S. Krabbe, V. Andersen, JF. Dahlerup, J. Kjeldsen, R. Salupere, J. Olsen, KR. Nielsen, P. Manninen, P. Collin, KH....
Jazyk angličtina Země Nizozemsko
Typ dokumentu časopisecké články, práce podpořená grantem
- MeSH
- časové faktory MeSH
- dospělí MeSH
- idiopatické střevní záněty diagnóza psychologie terapie MeSH
- kohortové studie MeSH
- kvalita zdravotní péče statistika a číselné údaje MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladiství MeSH
- mladý dospělý MeSH
- průzkumy a dotazníky MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- spokojenost pacientů statistika a číselné údaje MeSH
- vzdělávání pacientů jako téma * statistika a číselné údaje MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladiství MeSH
- mladý dospělý MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- Geografické názvy
- Evropa MeSH
- východní Evropa MeSH
BACKGROUND AND AIMS: The EpiCom study and inception cohort was initiated in 2010 in 31 centers from 14 Western and 8 Eastern European countries, covering a 10.1million person background population. Our aim was to investigate whether there is a difference between Eastern and Western Europe in health care and education of patients with inflammatory bowel disease (IBD). METHODS: A quality of care (QoC) questionnaire was developed in the EpiCom group consisting of 16 questions covering 5 items: time interval between the onset of symptoms and diagnosis, information, education, empathy and access to health care providers. RESULTS: Of 1,515 patients, 947 (217 east/730 west) answered the QoC questionnaire. Only 23% of all patients had knowledge about IBD before diagnosis. In Eastern Europe, significantly more patients searched out information about IBD themselves (77% vs. 68%, p<0.05), the main source was the Internet (92% vs. 88% p=0.23). In Western Europe, significantly more patients were educated by nurses (19% vs. 1%, p<0.05), while in Eastern Europe, gastroenterologists were easier to contact (80% vs. 68%, p<0.05). CONCLUSION: Health care differed significantly between Eastern and Western Europe in all items, but satisfaction rates were high in both geographic regions. Because of the low awareness and the rising incidence of IBD, general information should be the focus of patient organizations and medical societies. In Western Europe IBD nurses play a very important role in reducing the burden of patient management.
1st Department of Medicine Semmelweis University Budapest Hungary
Clinic of Gastroenterology University of Medicine 'Victor Babes' Timisoara Romania
Department of Gastroenterology Adelaide and Meath Hospital TCD Dublin Ireland
Department of Gastroenterology Hospital de São João Porto Portugal
Department of Gastroenterology Hull and East Yorkshire HNS Trust Hull UK
Department of Gastroenterology Moscow Regional Research Clinical Institute Moscow Russia
Department of Gastroenterology UHL County council of Östergötland Linköping Sweden
Department of Medical Gastroenterology Gentofte Hospital Copenhagen Denmark
Department of Medical Gastroenterology Odense University Hospital Odense Denmark
Department of Medicine 5 Aarhus University Hospital Arhus Denmark
Department of Medicine Division of Gastroenterology Örebro University Hospital Örebro Sweden
Department of Medicine Herning Central Hospital Herning Denmark
Digestive Disease Centre Medical Section Herlev University Hospital Copenhagen Denmark
Division of Endocrinology and Gastroenterology Tartu University Hospital Tartu Estonia
Gastroenterology Department Complexo Hospitalario Universitario de Vigo Vigo Spain Vigo Spain
Gastroenterology Department Hospital České Budějovice České Budějovice Czech Republic
Gastroenterology Unit Careggi Hospital Florence Italy
Hospital de Vale de Sousa Porto Portugal
Hull and East Yorkshire NHS Trust and Hull and York Medical School Hull Royal Infirmary Hull UK
IBD Center ISCARE Charles University Prague Czech Republic
Institute for Digestive Research Lithuanian University of Health Sciences Kaunas Lithuania
Institute for Molecular and Cell Biology University of Porto Porto Portugal
Institute of Pharmacology and Therapeutics Oporto Medical School Porto Portugal
Institute of Regional Health Research University of Southern Denmark Odense Denmark
Medical Department Dronning Ingrids Hospital Nuuk Greenland
Medical Department Hospital of Southern Jutland Aabenraa Denmark
Medical Department The National Hospital of the Faroe Islands Torshavn Faroe Islands
Medical Department Viborg Regional Hospital Viborg Denmark
Nicosia private practice Nicosia Cyprus
School of Health and Medical Sciences Örebro University Örebro Sweden
Sir Alan Park's Physiology Unit St Mark's Hospital Imperial College London London UK
Citace poskytuje Crossref.org
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- $a Burisch, J $u Digestive Disease Centre, Medical Section, Herlev University Hospital, Copenhagen, Denmark. Electronic address: burisch@dadlnet.dk.
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- $a Health care and patients' education in a European inflammatory bowel disease inception cohort: an ECCO-EpiCom study / $c J. Burisch, Z. Vegh, N. Pedersen, S. Cuković-Čavka, N. Turk, I. Kaimakliotis, D. Duricova, M. Bortlik, O. Shonová, N. Thorsgaard, S. Krabbe, V. Andersen, JF. Dahlerup, J. Kjeldsen, R. Salupere, J. Olsen, KR. Nielsen, P. Manninen, P. Collin, KH. Katsanos, EV. Tsianos, K. Ladefoged, G. Ragnarsson, E. Björnsson, Y. Bailey, C. O'Morain, D. Schwartz, S. Odes, P. Politi, A. Santini, G. Kiudelis, L. Kupcinskas, S. Turcan, F. Magro, L. Barros, D. Lazar, A. Goldis, I. Nikulina, E. Belousova, L. Sanromán, D. Martinez-Ares, S. Almer, Y. Zhulina, J. Halfvarson, N. Arebi, Y. Houston, S. Sebastian, E. Langholz, PL. Lakatos, P. Munkholm, . ,
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- $a BACKGROUND AND AIMS: The EpiCom study and inception cohort was initiated in 2010 in 31 centers from 14 Western and 8 Eastern European countries, covering a 10.1million person background population. Our aim was to investigate whether there is a difference between Eastern and Western Europe in health care and education of patients with inflammatory bowel disease (IBD). METHODS: A quality of care (QoC) questionnaire was developed in the EpiCom group consisting of 16 questions covering 5 items: time interval between the onset of symptoms and diagnosis, information, education, empathy and access to health care providers. RESULTS: Of 1,515 patients, 947 (217 east/730 west) answered the QoC questionnaire. Only 23% of all patients had knowledge about IBD before diagnosis. In Eastern Europe, significantly more patients searched out information about IBD themselves (77% vs. 68%, p<0.05), the main source was the Internet (92% vs. 88% p=0.23). In Western Europe, significantly more patients were educated by nurses (19% vs. 1%, p<0.05), while in Eastern Europe, gastroenterologists were easier to contact (80% vs. 68%, p<0.05). CONCLUSION: Health care differed significantly between Eastern and Western Europe in all items, but satisfaction rates were high in both geographic regions. Because of the low awareness and the rising incidence of IBD, general information should be the focus of patient organizations and medical societies. In Western Europe IBD nurses play a very important role in reducing the burden of patient management.
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- $a Pedersen, N $u Digestive Disease Centre, Medical Section, Herlev University Hospital, Copenhagen, Denmark.
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- 700 1_
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- 700 1_
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- 700 1_
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- 700 1_
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- 700 1_
- $a Salupere, R $u Division of Endocrinology and Gastroenterology, Tartu University Hospital, Tartu, Estonia.
- 700 1_
- $a Olsen, J $u Medical Department, The National Hospital of the Faroe Islands, Torshavn, Faroe Islands.
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- $a Manninen, P $u Department of Gastroenterology and Alimentary Tract Surgery, Tampere University Hospital, Tampere, Finland.
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- $a Katsanos, K H $u 1st Division of Internal Medicine and Division of Gastroenterology, Medical School, University of Ioannina, Ioannina, Greece.
- 700 1_
- $a Tsianos, E V $u 1st Division of Internal Medicine and Division of Gastroenterology, Medical School, University of Ioannina, Ioannina, Greece.
- 700 1_
- $a Ladefoged, K $u Medical Department, Dronning Ingrids Hospital, Nuuk, Greenland.
- 700 1_
- $a Ragnarsson, G $u Department of Internal Medicine, Section of Gastroenterology and Hepatology, The National University Hospital, Reykjavik, Iceland.
- 700 1_
- $a Björnsson, E $u Department of Internal Medicine, Section of Gastroenterology and Hepatology, The National University Hospital, Reykjavik, Iceland.
- 700 1_
- $a Bailey, Y $u Department of Gastroenterology, Adelaide and Meath Hospital, TCD, Dublin, Ireland.
- 700 1_
- $a O'Morain, C $u Department of Gastroenterology, Adelaide and Meath Hospital, TCD, Dublin, Ireland.
- 700 1_
- $a Schwartz, D $u Department of Gastroenterology and Hepatology, Soroka Medical Center and Ben Gurion University of the Negev, Beer Sheva, Israel.
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- $a Odes, S $u Department of Gastroenterology and Hepatology, Soroka Medical Center and Ben Gurion University of the Negev, Beer Sheva, Israel.
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- $a Politi, P $u U.O. di Medicina Interna e Gastroenterologia, Azienda Ospedaliera Istituti Ospitalieri di Cremona, Italy; On behalf of the EpiCom Northern Italy Centre based in Crema & Cremona, Firenze, Forlì, Padova and Reggio Emilia, Italy.
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