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7 záznamů v Medvik Filtry

Článek

2021 EULAR points to consider to support people with rheumatic and musculoskeletal diseases to participate in healthy and sustainable paid work

Boonen, Annelies
Autor Boonen, Annelies ORCID Internal Medicine, Division of Rheumatology, Maastricht University Medical Centre+, Maastricht, The Netherlands a.boonen@mumc.nl Care and Public Health Research Institute (Caphri), Maastricht University, Maastricht, The Netherlands
Webers, Casper
Autor Webers, Casper ORCID Internal Medicine, Division of Rheumatology, Maastricht University Medical Centre+, Maastricht, The Netherlands Care and Public Health Research Institute (Caphri), Maastricht University, Maastricht, The Netherlands
Butink, Maarten
Autor Butink, Maarten ORCID Internal Medicine, Division of Rheumatology, Maastricht University Medical Centre+, Maastricht, The Netherlands Social Medicine, Maastricht University, Maastricht, The Netherlands
Barten, Birgit
Autor Barten, Birgit EULAR Research Partner, EULAR PARE, Zurich, Switzerland
Betteridge, Neil
Autor Betteridge, Neil Neil Betteridge Associates, London, UK
Black, Dame Carol
Autor Black, Dame Carol Centre for Ageing Better, London, UK Independent Adviser to the UK Government on Combatting Drugs Misuse, London, UK
Bremander, Ann
Autor Bremander, Ann Department of Regional Health Research, University of Southern Denmark, Odense, Denmark Department of Clinical Sciences, Lund University, Lund, Sweden
Boteva, Boryana
Autor Boteva, Boryana EULAR Research Partner, EULAR PARE, Zurich, Switzerland Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), Sofia, Bulgaria
Brzezińska, Olga
Autor Brzezińska, Olga ORCID Department of Rheumatology, Medical University of Lodz, Lodz, Poland
Chauhan, Lina
Autor Chauhan, Lina British Airways, London, UK

Annals of the rheumatic diseases. 2023 ; 82 (1) : 57-64. [pub] 20220915

Ann Rheum Dis
ISSN 1468-2060
Medvik
Zdroj

AIM: As part of its strategic objectives for 2023, EULAR aims to improve the work participation of people with rheumatic and musculoskeletal diseases (RMDs). One strategic initiative focused on the development of overarching points to consider (PtC) to support people with RMDs in healthy and sustainable paid work participation. METHODS: EULAR's standardised operating procedures were followed. A steering group identified six research areas on paid work participation. Three systematic literature reviews, several non-systematic reviews and two surveys were conducted. A multidisciplinary taskforce of 25 experts from 10 European countries and Canada formulated overarching principles and PtC after discussion of the results of literature reviews and surveys. Consensus was obtained through voting, with levels of agreement obtained anonymously. RESULTS: Three overarching principles and 11 PtC were formulated. The PtC recognise various stakeholders are important to improving work participation. Five PtC emphasise shared responsibilities (eg, obligation to provide active support) (PtC 1, 2, 3, 5, 6). One encourages people with RMDs to discuss work limitations when necessary at each phase of their working life (PtC 4) and two focus on the role of interventions by healthcare providers or employers (PtC 7, 8). Employers are encouraged to create inclusive and flexible workplaces (PtC 10) and policymakers to make necessary changes in social and labour policies (PtC 9, 11). A research agenda highlights the necessity for stronger evidence aimed at personalising work-related support to the diverse needs of people with RMDs. CONCLUSION: Implementation of these EULAR PtC will improve healthy and sustainable work participation of people with RMDs.

Článek

EULAR/eumusc.net standards of care for rheumatoid arthritis: cross-sectional analyses of importance, level of implementation and care gaps experienced by patients and rheumatologists across 35 European countries

Annals of the rheumatic diseases. 2020 ; 79 (11) : 1423-1431. [pub] 20200901

Ann Rheum Dis
ISSN 1468-2060
Medvik
Zdroj

OBJECTIVE: As part of European League against Rheumatism (EULAR)/European Musculoskeletal Conditions Surveillance and Information Network, 20 user-focused standards of care (SoCs) for rheumatoid arthritis (RA) addressing 16 domains of care were developed. This study aimed to explore gaps in implementation of these SoCs across Europe. METHODS: Two cross-sectional surveys on the importance, level of and barriers (patients only) to implementation of each SoC (0-10, 10 highest) were designed to be conducted among patients and rheumatologists in 50 European countries. Care gaps were calculated as the difference between the actual and maximum possible score for implementation (ie, 10) multiplied by the care importance score, resulting in care gaps (0-100, maximal gap). Factors associated with the problematic care gaps (ie, gap≥30 and importance≥6 and implementation<6) and strong barriers (≥6) were further analysed in multilevel logistic regression models. RESULTS: Overall, 26 and 31 countries provided data from 1873 patients and 1131 rheumatologists, respectively. 19 out of 20 SoCs were problematic from the perspectives of more than 20% of patients, while this was true for only 10 SoCs for rheumatologists. Rheumatologists in countries with lower gross domestic product and non-European Union countries were more likely to report problematic gaps in 15 of 20 SoCs, while virtually no differences were observed among patients. Lack of relevance of some SoCs (71%) and limited time of professionals (66%) were the most frequent implementation barriers identified by patients. CONCLUSIONS: Many problematic gaps were reported across several essential aspects of RA care. More efforts need to be devoted to implementation of EULAR SoCs.

Článek

Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries

Annals of the rheumatic diseases. 2019 ; 78 (11) : 1472-1479. [pub] 20190819

Ann Rheum Dis
ISSN 1468-2060
Medvik
Zdroj

OBJECTIVES: To describe and explore differences in formal regulations around sick leave and work disability (WD) for patients with rheumatoid arthritis (RA), as well as perceptions by rheumatologists and patients on the system's performance, across European countries. METHODS: We conducted three cross-sectional surveys in 50 European countries: one on work (re-)integration and social security (SS) system arrangements in case of sick leave and long-term WD due to RA (one rheumatologist per country), and two among approximately 15 rheumatologists and 15 patients per country on perceptions regarding SS arrangements on work participation. Differences in regulations and perceptions were compared across categories defined by gross domestic product (GDP), type of social welfare regime, European Union (EU) membership and country RA WD rates. RESULTS: Forty-four (88%) countries provided data on regulations, 33 (75%) on perceptions of rheumatologists (n=539) and 34 (77%) on perceptions of patients (n=719). While large variation was observed across all regulations across countries, no relationship was found between most of regulations or income compensation and GDP, type of SS system or rates of WD. Regarding perceptions, rheumatologists in high GDP and EU-member countries felt less confident in their role in the decision process towards WD (β=-0.5 (95% CI -0.9 to -0.2) and β=-0.5 (95% CI -1.0 to -0.1), respectively). The Scandinavian and Bismarckian system scored best on patients' and rheumatologists' perceptions of regulations and system performance. CONCLUSIONS: There is large heterogeneity in rules and regulations of SS systems across Europe in relation to WD of patients with RA, and it cannot be explained by existing welfare regimes, EU membership or country's wealth.