Background: Patients with advanced kidney disease suffer from burdensome symptoms, which should be assessed by valid and reliable patient-reported outcome measures. This study aimed to provide a translation, cultural adaptation, and validation of the Czech version of the IPOS-r. Methods: The IPOS-r was translated to Czech and culturally adapted using cognitive interviews. During the validation phase, patients and staff in dialysis centres and outpatient renal clinics completed the IPOS-r. Internal consistency was tested with Cronbach’s alpha, its reliability via intraclass correlation coefficient for total IPOS-r score, and weighted Kappa (for test-retest and interrater reliability of individual items). Convergent validity was tested with Spearman correlation to Kidney Disease Quality of Life Survey-Short Form 1.2 (KDQOL-SF 1.2). We assessed sensitivity to change using a distribution-based approach. Results: Two sets of translators independently performed forward and backward translations of the IPOS-r. Ten patients and ten health care professionals participated in cognitive pre-testing. The sample size for validation included 88 patients (mean age 66 ± SD13.8; 58% men) who were treated with haemodialysis (70.5%), home haemodialysis (5.5%), peritoneal dialysis (3%), and conservative management (21%). Cronbach’s alpha was 0.72, and the intraclass correlation was 0.84 for test-retest reliability and 0.73 for interrater reliability. The IPOS-r correlated with KDQOL-SF 1.2 had a rho between 0.4–0.8 for most of the IPOS-r items, showing good convergent validity. The IPOS-r measure is feasible and takes 9 minutes to complete. Patients who reported a change in health status after one month demonstrated a total IPOS-r score change of eight points in both positive and negative directions. Conclusions: The process of translation and cultural adaptation of the IPOS-r was successful, and the Czech IPOS-r measure is a valid and reliable tool. The Czech IPOS-r can be used to assess symptoms in patients with advanced chronic kidney disease. Trial registration: GAUK [82121].
- Keywords
- IPOS-r,
- MeSH
- Kidney Failure, Chronic psychology MeSH
- Quality of Life psychology MeSH
- Humans MeSH
- Kidney Diseases * psychology MeSH
- Surveys and Questionnaires * MeSH
- Reproducibility of Results MeSH
- Validation Studies as Topic MeSH
- Check Tag
- Humans MeSH
- Publication type
- Review MeSH
- Geographicals
- Czech Republic MeSH
BACKGROUND: Patients with advanced kidney disease suffer from burdensome symptoms, which should be assessed by valid and reliable patient-reported outcome measures. This study aimed to provide a translation, cultural adaptation, and validation of the Czech version of the IPOS-r. METHODS: The IPOS-r was translated to Czech and culturally adapted using cognitive interviews. During the validation phase, patients and staff in dialysis centres and outpatient renal clinics completed the IPOS-r. Internal consistency was tested with Cronbach's alpha, its reliability via intraclass correlation coefficient for total IPOS-r score, and weighted Kappa (for test-retest and interrater reliability of individual items). Convergent validity was tested with Spearman correlation to Kidney Disease Quality of Life Survey-Short Form 1.2 (KDQOL-SF 1.2). We assessed sensitivity to change using a distribution-based approach. RESULTS: Two sets of translators independently performed forward and backward translations of the IPOS-r. Ten patients and ten health care professionals participated in cognitive pre-testing. The sample size for validation included 88 patients (mean age 66 ± SD13.8; 58% men) who were treated with haemodialysis (70.5%), home haemodialysis (5.5%), peritoneal dialysis (3%), and conservative management (21%). Cronbach's alpha was 0.72, and the intraclass correlation was 0.84 for test-retest reliability and 0.73 for interrater reliability. The IPOS-r correlated with KDQOL-SF 1.2 had a rho between 0.4-0.8 for most of the IPOS-r items, showing good convergent validity. The IPOS-r measure is feasible and takes 9 minutes to complete. Patients who reported a change in health status after 1 month demonstrated a total IPOS-r score change of eight points in both positive and negative directions. CONCLUSIONS: The process of translation and cultural adaptation of the IPOS-r was successful, and the Czech IPOS-r measure is a valid and reliable tool. The Czech IPOS-r can be used to assess symptoms in patients with advanced chronic kidney disease. TRIAL REGISTRATION: GAUK [82121].
- MeSH
- Quality of Life * psychology MeSH
- Humans MeSH
- Kidney Diseases * psychology MeSH
- Surveys and Questionnaires MeSH
- Psychometrics MeSH
- Reproducibility of Results MeSH
- Aged MeSH
- Cross-Cultural Comparison MeSH
- Check Tag
- Humans MeSH
- Male MeSH
- Aged MeSH
- Female MeSH
- Publication type
- Journal Article MeSH
- Geographicals
- Czech Republic MeSH
Chronické selhání ledvin (CHSL) je život limitující onemocnění, a to i s náhradou funkce ledvin. CHSL a jeho léčba patří mezi onemocnění, která svou náročností a intruzivností nejvíce doléhají na pacienta a jeho blízké. Je to právě integrace podpůrné a paliativní péče, která umožňuje individualizaci péče podle měnících se potřeb pacienta v průběhu většinou dlouholeté léčby CHSL.
End-stage kidney disease (ESKD) is life limiting disease even with renal replacement therapies. ESKD is one of the chronic diseases that, due to their complexity and intrusiveness, affect the patient and his loved ones the most. Integration of Renal Supportive Care into nephrology allows individualization of care according to the changing needs of the patient during mostly long-term treatment.
- MeSH
- Hospice and Palliative Care Nursing MeSH
- Humans MeSH
- Aftercare MeSH
- Kidney Diseases psychology therapy MeSH
- Palliative Care * MeSH
- Aged, 80 and over MeSH
- Check Tag
- Humans MeSH
- Aged, 80 and over MeSH
- Female MeSH
- Publication type
- Case Reports MeSH
- MeSH
- Chronic Disease MeSH
- Renal Insufficiency, Chronic pathology MeSH
- Diabetes Mellitus pathology MeSH
- Hypertension complications pathology MeSH
- Humans MeSH
- Kidney Diseases * physiopathology pathology psychology MeSH
- Stress, Psychological complications physiopathology pathology MeSH
- Check Tag
- Humans MeSH
Jessenius
330 stran : ilustrace, tabulky ; 24 cm
V posledním desetiletí stoupá počet pacientů s chronickým selháním ledvin, jejichž léčba je velmi komplikovaná - ať už z důvodu závažných přidružených onemocnění, pokročilého věku, nebo kombinace obou faktorů. U řady těchto nemocných je zahájení dialýzy spojeno se zhoršením funkčního stavu a kvality života. Cílem podpůrné nefrologické péče je udržet dobrou kvalitu života ve fázi pokročilého onemocnění ledvin. V současnosti přibývá nefrologů, kteří jsou motivovaní k zavedení paliativní péče do běžné praxe. Nakladatelská anotace . Kráceno
- MeSH
- Quality of Life MeSH
- Kidney Diseases psychology therapy MeSH
- Palliative Care ethics psychology MeSH
- Publication type
- Monograph MeSH
- Conspectus
- Patologie. Klinická medicína
- NML Fields
- nefrologie
AIMS: The reaction to diagnosis and quality of life (QOL) in autosomal dominant tubulointerstitial kidney disease (ADTKD) due to
- MeSH
- Adult MeSH
- Genetic Testing MeSH
- Quality of Life * MeSH
- Middle Aged MeSH
- Humans MeSH
- Young Adult MeSH
- Mucin-1 * genetics MeSH
- Mutation * MeSH
- Kidney Diseases * genetics psychology MeSH
- Cross-Sectional Studies MeSH
- Aged MeSH
- Uromodulin * genetics MeSH
- Check Tag
- Adult MeSH
- Middle Aged MeSH
- Humans MeSH
- Young Adult MeSH
- Male MeSH
- Aged MeSH
- Female MeSH
