Cieľ: Zistiť priemernú intenzitu aktuálne pociťovanej bolesti, jej vplyv na behaviorálnu a funkčnú oblasť života podľa Medical Outcomes Study (MOS) Pain Effects Scale (PES) a aktuálne pociťovanú celkovú kvalitu života podľa Multiple Sclerosis Quality of Life 54 (MSQoL-54). Súbor a metodika: V kvantitatívnej observačnej štúdii participovalo 108 pacientov s RS. Dotazník obsahoval Vizuálnu analógovú škálu bolesti (VAS) na posúdenie intenzity aktuálnej bolesti, MOS PES na zistenie vplyvu bolesti na vybrané funkčné a behaviorálne oblasti kvality života, subjektívne vnímanie celkovej kvality života položkou nástroja MSQoL-54. Opisnou štatistikou boli vyhodnotené priemery a vzťahy Spearmanovým korelačným koeficientom. Výsledky: Pacienti uvádzali priemernú stredne silnú intenzitu bolesti podľa VAS (M = 3,8). Farmakoterapiu užívalo 66,7 % pacientov s efektom občasnej a častej minimalizácie bolesti; najčastejšie nesteroidné antiflogistiká (n = 55). Nefarmakologické metódy využívalo 36 pacientov s občasnou a častou minimalizáciou bolesti; najviac cvičenie. MOS PES ukázal mierny vplyv bolesti na funkčné a behaviorálne oblasti kvality života. Podľa MSQoL-54 bola celková kvalita života hodnotená ako uspokojivá (M = 5,8) a so stúpajúcou intenzitou bolesti sa znižovala. Zvyšujúca intenzita bolesti podľa MOS PES negatívne ovplyvňovala náladu, schopnosť chodiť, spánok, bežné činnosti a rekreačné aktivity. Záver: Objektivizácia bolesti a identifikácia jej vplyvu na kvalitu života pomôže zefektívniť individualizovanú liečbu RS.
Aim: To determine the mean intensity of currently experienced pain, its impact on behavioral and functional domains of life according to the The Medical Outcomes Study (MOS) Pain Effects Scale (PES) and currently experienced overall quality of life according to the Multiple Sclerosis Quality of Life 54 (MSQoL-54) in MS. Patients and methods: The quantitative observational study had 108 MS patients. The questionnaire included the Visual Analogue Scale (VAS) to assess the intensity of current pain, MOS PES to determine the impact of pain on selected functional and behavioral areas of the quality of life, and subjective perception of the overall quality of life using the item of the MSQoL-54. Descriptive statistics was used to evaluate averages and Spearman’s correlation coefficient to detect any relationship. Results: Patients reported a mean moderate pain intensity according to the VAS (M = 3.8). Pharmacotherapy was used by 66.7% of patients with the effect of occasional and frequent pain minimization; most commonly used drugs were nonsteroidal antiphlogistics (N = 55). Non-pharmacological methods were used by 36 patients with intermittent and frequent pain minimization; most used method was exercise. MOS PES showed a moderate effect of pain on functional and behavioral quality of life domains. According to the MSQoL-54, overall quality of life was rated as satisfactory (M = 5.8), and was rated lower with increasing pain intensity. Increasing pain intensity according to the MOS PES negatively affected mood, walking ability, sleep, activities of daily living, and recreational activities. Conclusion: Objectification of pain and identification of its impact on quality of life will help to improve individualized MS treatment.
- MeSH
- analgetika terapeutické užití MeSH
- antikonvulziva terapeutické užití MeSH
- bolest * etiologie MeSH
- cvičení MeSH
- hodnotící studie jako téma MeSH
- kvalita života * psychologie MeSH
- lidé MeSH
- management bolesti metody MeSH
- měření bolesti metody MeSH
- průzkumy a dotazníky MeSH
- roztroušená skleróza * komplikace psychologie terapie MeSH
- Check Tag
- lidé MeSH
Aim: To assess the quality of life in adult patients with migraine. Methods: The sample consisted of 194 respondents. The Migraine Specific Quality of Life Questionnaire (MSQ version 2.1) was used for data collection. Data were evaluated using descriptive statistics and correlation analysis. Results: The sample consisted of 92.3% women and 7.7% men with a mean age of 42.085 ± 10.48 years. The median duration of migraine was 15.70 ± 10.64 years. The majority were those with secondary education (56.2%) and those doing mental work (60.8%). According to the average score achieved in the MSQ version 2.1, patients' quality of life was at average level (M = 50.1). Our results showed that, longer duration (p = 0.012), and high frequency of migraine attacks per month (p < 0.001) and per year (p < 0.001) reduced the quality of life. Meanwhile, the quality of life increased with increasing education. Finally, sex (p = 0.466), occupation (p = 0.079) and migraine medication use (p = 0.052) did not prove to be significant variables in relation to the quality of life. Conclusion: Understanding the quality of life of adult patients with migraine using the MSQ version 2.1 is important for the effective management of this disease. Nurses and physicians should routinely evaluate the quality of life of patients with severe chronic neurological disease as a complementary assessment of patients with migraine.
- MeSH
- kvalita života MeSH
- lidé MeSH
- migréna * MeSH
- průzkumy a dotazníky MeSH
- Check Tag
- lidé MeSH
Bolesť hlavy pri migréne má svoje charakteristiky v kontexte jej lokalizácie, radiácie, kvality, intenzity a časového trvania. Cieľom našej štúdie bolo posúdiť charakteristiky bolesti hlavy u dospelých pacientov s migrénou. V kvantitatívnej observačnej prospektívnej prierezovej štúdii vyplnilo dotazník 194 respondentov (174 žien, 15 mužov). Dotazník obsahoval položky zamerané na bolesť podľa akronymu SOCRATES (lokalizácia, nástup, jej vyžarovanie, pridružené symptómy, čas trvania, provokujúce a zmierňujúce faktory, intenzita) a demografické položky. Zber dát prebehol elektronicky a printovo. Deskriptívna štatistika bola použitá na vyhodnotenie dát. Podľa odpovedí respondentov bolesť hlavy pri nástupe migrenózneho záchvatu bola najčastejšie lokalizovaná za pravým okom, na pravom spánku, ktorej predchádzali najčastejšie nevoľnosť, ťažkosti s koncentráciou a únava. Bolesť vyžarovala do pravej polovice hlavy. Pacienti ju popisovali z hľadiska charakteru ako pulzujúcu, búšiacu, tlakovú a ostrú. Phonofóbia, fotofóbia, vomitus a pocit točenia hlavy boli najčastejšie pridružené symptómy. Jeden migrenózny záchvat trval priemerne 46,2 hodiny. Bolesť dosahovala stredne silnú intenzitu pri jej nástupe a počas záchvatu sa zvýšila na silnú až extrémne silnú. Stres, zmena počasia a nedostatok spánku migrenóznu bolesť provokovali a zmiernenie bolesti prinášali ticho a tma, odpočinok a aplikácia tepla/chladu v podobe obkladu. Poznanie charakteristík bolesti vedie k jej efektívnemu manažmentu.
Migraine headache has its characteristics in the context of localization, radiation, quality, intensity and duration. The aim of our study was to assess the characteristics of headache in adult patients with migraine. In a quantitative observational prospective cross-sectional study, 194 respondents (174 women, 15 men) completed the questionnaire. The questionnaire contained items focused on pain according to the SOCRATES acronym (localization, onset, its radiation, associated symptoms, duration, provoking and mitigation factors, intensity) and demographic items. Data collection took place electronically and in print. Descriptive statistics were used to evaluate the data. According to the answers of the respondents, the headache at the onset of a migraine attack was most often located behind the right eye, on the right temple, which was most often preceded by nausea, difficulty concentrating and fatigue. The pain radiated to the right side of the head. Patients described it in terms of character as pulsating, throbbing, pressure and sharp. Phonophobia, photophobia, vomitus and dizziness were the most common associated symptoms. One migraine attack lasted an average of 46.2 hours. The pain was moderately intense at onset and increased to severe to extremely severe during the attack. Stress, change of weather and lack of sleep provoked migraine pain and pain relief silence and darkness, rest and the application of heat/cold in the form of a compress. Knowing the characteristics of pain leads to its effective management.
Cieľ: Cieľom štúdie bolo opísať a interpretovať dopad sklerózy multiplex (SM) na vybrané sociálne aspekty života, na rodinu a pracovný život. Design: Kvalitatívna prierezová štúdia. Metodika: Súbor tvorilo 14 probandov so SM, s priemerným vekom 44,7 rokov (± 9,8) a priemernou dĺžkou ochorenia 9,93 roka (± 5,97). Na zber empirických údajov bol použitý pološtruktúrovaný rozhovor podľa vopred pripraveného protokolu vlastnej konštrukcie v období január-október 2018. Rozhovory boli analyzované prostredníctvom interpretatívnej fenomenologickej analýzy. Výsledky: Symptómy ochorenia limitovali probandov pri vykonávaní aktivít denného života, prežívali strach zo straty sebestačnosti a obavy z budúcnosti. SM ich limitovala v pracovnom živote pri progresii ochorenia, čo súviselo so znížením kvality ich života. U väčšiny z nich SM ovplyvnila aj kvalitu vzťahov v rodine, vrátane partnerského. Partneri a deti probandov boli zdrojom sociálnej opory, ale potrebovali čas na akceptáciu SM a života s ňou. Záver: Poznanie vybraných aspektov života u jednotlivcov so SM prispeje k poznaniu ich problémov a dáva možnosť konkrétnej pomoci v rámci zaistenia komplexnej starostlivosti.
Aim: To describe and interpret the impact of multiple sclerosis (MS) on selected social aspects of life, on the family and working life. Design: A qualitative cross-sectional study. Methods: The group consisted of 14 probands with MS, with an average age of 44.7 years (± 9.8) and average disease duration of 9.93 years (± 5.97). To collect empirical data, we used a semi-structured interview according to a pre-prepared protocol of our own design, in the period between January-October 2018. The interviews were analysed via an Interpretative Phenomenological Analysis. Results: Due to the disease symptoms, the probands experienced limitations when performing daily activities. They also experienced fear of losing self-sufficiency and were worried about the future. With the progression of the disease, there were also limitations in their working life which affected the quality of their lives. For most of them, MS also had an impact on the quality of family relationships including relations with their partners. Although the partners and children of probands were a source of social support, these people needed some time to accept MS and live with it. Conclusions: Knowledge of selected aspects of life in individuals with MS can contribute to knowing their problems, and makes it possible to provide specific help within complex care provision.
BACKGROUND: Dignity is a fundamental concept in healthcare. The symptoms of multiple sclerosis have a negative effect on dignity. Understanding of lived experience of dignity in people with multiple sclerosis is crucial to support dignity in practice. RESEARCH AIM: The aim was to explore the sense of dignity experienced by people with multiple sclerosis. RESEARCH DESIGN AND PARTICIPANTS: An interpretative phenomenological analysis design was adopted, using data collected through face-to-face interviews with 14 participants. ETHICAL CONSIDERATIONS: The study was approved by the faculty Ethical Committee (No. EC 1828/2016). FINDINGS: Four interconnected superordinate themes emerged from analysis: Loss of a fully-fledged life: Violating the dignity-of-self; To accept and fight: Promoting the dignity-of-self; Contempt and rudeness: Indignity-in-relation; and Those who know and see, help: Promoting dignity-in-relation. The loss of former fully-fledged life has a dramatic impact on integrity and impaired dignity-of-self. Accepting illness and changed identity impaired by multiple sclerosis was the step that the participants considered to be important for reacquiring the sense of dignity. The participants encountered misunderstandings, prejudices, embarrassment, insensitive remarks, labelling, unwillingness and impersonal treatment as indignities. Acceptance of their condition, needed support, the feeling of being part of a group, sensitivity and the sharing of problems had a positive effect on their dignity. DISCUSSION: Continual changes in functional ability threaten an individual's identity and were experienced as violations of dignity. Based on this, participant's dignity-of-self was not a moral, but much more existential value. Acceptance of changed identity and fighting spirit were important for restoring their dignity-of-self. The misunderstandings, prejudices and unwillingness had a negative impact on their dignity-in-relation. On the other side, support from others in fighting promoted their dignity-in-relation. CONCLUSION: Dignity is manifested as a complex phenomenon of lived experience of people with multiple sclerosis and also an umbrella concept for providing good quality of person-centred care.
- MeSH
- dospělí MeSH
- důstojnost lidského života MeSH
- kvalitativní výzkum MeSH
- lidé středního věku MeSH
- lidé MeSH
- rozhovory jako téma metody MeSH
- roztroušená skleróza komplikace psychologie MeSH
- uznání * MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
Cieľ: V súbore pa cientov s neurologickým ochorením identit- kovať významné rizikové faktory pádu a posúdiť ich predikčnú hodnotu. Súbor a metodika: Do prospektívnej štúdie bolo zaradených 298 hospitalizovaných pacientov. Rizikové faktory pádu boli zisťované analýzou zdravotnej dokumentácie, výšku rizika pádu určil skríning podľa Morse Fall Scale (MFS) prijatí na hospitalizáciu. Na identifikáciu významných rizikových faktorov pádu bol použitý mnohorozmerný logistický regresný model. Relatívne riziko pádu bolo kvantifikované pomocou odds ratio (OR). Na posúdenie predikčnej hodnoty vybraných rizikových faktorov pádu bola použitá receiver operat ing characteristic (ROC) krivka so zhodnotením plochy pod krivkou (area under curve; AUC). Výsledky: V súbore pa cientov (n = 298) k najpočetnejším rizikovým faktorom pádu patrili: porucha chôdze, rovnováhy a hybnosti (80,9 %), farmakoterapia (57,0 %), pridružené ochorenie (52,7 %) a porucha zraku (52,3 %). Priemerné skóre rizika pádu bolo na úrovni stredného rizika (MFS skóre 44,2 ± 21,2). Najvyššie riziko pádu bolo zaznamenané pri rizikových faktoroch: pridružené ochorenie (OR = 5,452; CI 1,693– 20,033; p = 0,007), medicínska diagnóza G35– G37 (OR = 4,597; CI 1,273– 17,481; p = 0,021), porucha zraku (OR = 3,494; CI 1,281– 10,440; p = 0,019), výška rizika pádu podľa MFS pri príjme (OR = 1,18; CI 1,135– 1,252; p < 0,001). Predikčná hodnota rizikových faktorov vyjadrená ROC krivkou bola AUC = 0,934. Záver: Identifi kácia rizikových faktorov pádu je prvým krokom v účinnej prevencii tejto nežiaducej udalosti počas hospitalizácie. Cielený skríning rizika pádu umožní naplánovať a implementovať intervencie na minimalizáciu rizika pádu.
Aim: To identify significant fall risk factors in in-patients with neurological disease and to as sess their predictive value. Patients and methods: 298 in-patients were included into the prospective study. Fall risk factors were as ses sed through analysis of medical records, and fall risk score was identified through the Morse Fall Scale (MFS) screening during admis sion to the hospital. A multidimensional logistic regres sion model was used to identify significant fall risk factors. The relative risk of falling was quantified us ing the odds ratio (OR). Receiver operat ing characteristic (ROC) curve with area under the curve (AUC) was used to as sess the predictive value of selected fall risk factors. Results: The most frequent fall risk factors were in the sample (N = 298): gait, balance and mobility disorders (80.9%), pharmacother apy (57.0%), associated dis ease (52.7%), and visual impairment (52.3%). The average fall risk score was at medium risk level (MFS score of 44.2 ± 21.2). The highest risk of fal l ing was seen in risk factors: associated dis ease (OR = 5.452; CI 1.693– 20.033; P = 0.007), medical dia gnosis G35–G37 (OR = 4.597, CI 1.273–17.481; P = 0.021), visual impairment (OR = 3.494; CI 1.281– 10.440; P = 0.019), and fall risk level according to the MFS at admis sion (OR = 1.18; CI 1.135– 1.252; P < 0.001). The predictive value of risk factors expres sed by the ROC curve was AUC = 0.934. Conclusions: Identifying fall risk factors is the fi rst step in effective prevent ion of this adverse event during hospitalization. Targeted fall risk screen ing will al low plan n ing and implementation of interventions to minimize the risk of falling.
- MeSH
- hospitalizace MeSH
- lidé MeSH
- nemoci nervového systému komplikace MeSH
- prospektivní studie MeSH
- rizikové faktory MeSH
- úrazy pádem * prevence a kontrola MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- práce podpořená grantem MeSH
1. elektronické vydání 1 online zdroj (136 stran)
Riziko pádů v ošetřovatelské praxi je aktuálním bodem managementu nežádoucích rizik ve zdravotnictví. Kniha zahrnuje informace o rizikových skupinách nemocných, uvádí typy pádů a jejich mechanismy. Zabývá se konkrétními intervencemi k prevenci pádu nemocných ve zdravotnických zařízeních.
Aim:The aim was to synthesize themes and influencing factors of personal dignity experienced among patients with multiple sclerosis (MS) in the context of health care.Design:A qualitative narrative review with regard to PRISMA statements was used as a studydesign.Methods:The CASP Qualitative checklist was chosen for critical appraisaland thematic synthesisfor synthesis of findings was adopted. Narrative the electronic databases: Academic Search Complete; Health Source: Nursing/Academic Edition; Humanities International Complete; MEDLINE were used for search. 230 studies were retrieved. 4 studies met the reviewers’ inclusion criteria and were included into the study. Results:Three synthesized themes –Ill body, changed healthy identity and personal integrity (8 subthemes); Fighting spirit and patient’s factors (8 subthemes) and Social factors (8 subthemes) –seem to be relevant for dignity of patients with MS. Narrative review shows tendency that patients with MS are in the danger of loss of dignity. Conclusion:Focused on personal dignity of people with MS brings possibility to have non-psychiatric approach to patients’ personality fully consistent with the patient-centred approach in the context of health care. Results will be used as a framework for ethical reflection, interventions focused on how to improve or maintain personal dignity of patients with MS. Based on the critical appraisal, researchers should pay more attention to reflexivity. Accordingto study limitations, a systematic review is needed.
- MeSH
- důstojnost lidského života MeSH
- lidé MeSH
- metaanalýza jako téma MeSH
- roztroušená skleróza * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- práce podpořená grantem MeSH
Sestra
1. vydání 135 stran : tabulky ; 21 cm
Publikace spojuje teoretické informace k problematice rizikových situací nejen v neurologii. Uvádí typy pádů a jejich následky, rizikové faktory, neurologická onemocnění spojená s rizikem pádu a intervence minimalizující tato rizika. Nakladatelská anotace. Kráceno
Aim: To determine the correlation between pharmacotherapy and high risk of fall based on the Morse Fall Scale (MFS score ≥45) in acute and long-term care settings. Design: Aquantitative cross-sectional descriptive correlation study. Methods:The study was conducted at a University Hospitalin Martin(UHM) anda selected long-term care facility (LTC) in Martin (Slovakia) June–October 2016. The pharmacotherapeutic data were obtained from the health documentation of the respondents. The fall risk was assessed by using the MFS screening tool within 24–48 hours of admission to the facility. Results:For the group of UHM patients (n = 63), the mean MFS score for fall risk was high (60.6 ± 22.4), and the correlation (p = 0.030) between the number of medications administered in 24 hours and high risk of fall was significant. For the group of LTCpatients (n = 89), the mean MFS score for fall risk was moderate (35.4 ± 15.9). Thecorrelations were not significant. Conclusion: Pharmacotherapy is animportant fall risk factor; therefore, it is necessary to determine it within the assessment of overall fall risk. The risk management of pharmacotherapy is an effective and important multifactorial intervention in programmes of fall prevention inacute and long-term care.
- Klíčová slova
- Morse Fall Scale,
- MeSH
- dlouhodobá péče statistika a číselné údaje MeSH
- farmakoterapie * statistika a číselné údaje MeSH
- hodnocení rizik metody statistika a číselné údaje MeSH
- hospitalizace statistika a číselné údaje MeSH
- korelace dat MeSH
- lidé středního věku MeSH
- lidé MeSH
- průřezové studie MeSH
- rizikové faktory MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- úrazy pádem * prevence a kontrola MeSH
- Check Tag
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- práce podpořená grantem MeSH
- Geografické názvy
- Slovenská republika MeSH