user-centered design
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BACKGROUND: Secondary schools are an ideal setting to identify young people experiencing mental health difficulties such as anxiety or depression. However, current methods of identification rely on cumbersome paper-based assessments, which are lengthy and time-consuming to complete and resource-intensive for schools to manage. Artemis-A is a prototype web app that uses computerized adaptive testing technology to shorten the length of the assessment and provides schools with a simple and feasible solution for mental health assessment. OBJECTIVE: The objectives of this study are to coproduce the main components of the Artemis-A app with stakeholders to enhance the user interface, to carry out usability testing and finalize the interface design and functionality, and to explore the acceptability and feasibility of using Artemis-A in schools. METHODS: This study involved 2 iterative design feedback cycles-an initial stakeholder consultation to inform the app design and user testing. Using a user-centered design approach, qualitative data were collected through focus groups and interviews with secondary school pupils, parents, school staff, and mental health professionals (N=48). All transcripts were thematically analyzed. RESULTS: Initial stakeholder consultations provided feedback on preferences for the user interface design, school administration of the assessment, and outcome reporting. The findings informed the second iteration of the app design and development. The unmoderated usability assessment indicated that young people found the app easy to use and visually appealing. However, school staff suggested that additional features should be added to the school administration panel, which would provide them with more flexibility for data visualization. The analysis identified four themes relating to the implementation of the Artemis-A in schools, including the anticipated benefits and drawbacks of the app. Actionable suggestions for designing mental health assessment apps are also provided. CONCLUSIONS: Artemis-A is a potentially useful tool for secondary schools to assess the mental health of their pupils that requires minimal staff input and training. Future research will evaluate the feasibility and effectiveness of Artemis-A in a range of UK secondary schools.
- Publikační typ
- časopisecké články MeSH
Background: Huntington's disease (HD) is an autosomal dominant neurodegenerative disease that affects the quality of life (QoL) of HD gene expansion carriers (HDGECs) and their partners. Although HD expertise centers have been emerging across Europe, there are still some important barriers to care provision for those affected by this rare disease, including transportation costs, geographic distance of centers, and availability/accessibility of these services in general. eHealth seems promising in overcoming these barriers, yet research on eHealth in HD is limited and fails to use telehealth services specifically designed to fit the perspectives and expectations of HDGECs and their families. In the European HD-eHelp study, we aim to capture the needs and wishes of HDGECs, partners of HDGECs, and health care providers (HCPs) in order to develop a multinational eHealth platform targeting QoL of both HDGECs and partners at home. Methods: We will employ a participatory user-centered design (UCD) approach, which focusses on an in-depth understanding of the end-users' needs and their contexts. Premanifest and manifest adult HDGECs (n = 76), partners of HDGECs (n = 76), and HCPs (n = 76) will be involved as end-users in all three phases of the research and design process: (1) Exploration and mapping of the end-users' needs, experiences and wishes; (2) Development of concepts in collaboration with end-users to ensure desirability; (3) Detailing of final prototype with quick review rounds by end-users to create a positive user-experience. This study will be conducted in the Netherlands, Germany, Czech Republic, Italy, and Ireland to develop and test a multilingual platform that is suitable in different healthcare systems and cultural contexts. Discussion: Following the principles of UCD, an innovative European eHealth platform will be developed that addresses the needs and wishes of HDGECs, partners and HCPs. This allows for high-quality, tailored care to be moved partially into the participants' home, thereby circumventing some barriers in current HD care provision. By actively involving end-users in all design decisions, the platform will be tailored to the end-users' unique requirements, which can be considered pivotal in eHealth services for a disease as complex and rare as HD.
- Publikační typ
- časopisecké články MeSH
INTRODUCTION: eHealth seems promising in addressing challenges in the provision of care for Huntington's disease (HD) across Europe. By harnessing information and communication technologies, eHealth can partially relocate care from specialized centers to the patients' home, thereby increasing the availability and accessibility of specialty care services beyond regional borders. Previous research on eHealth (development) in HD is however limited, especially when it comes to including eHealth services specifically designed together with HD gene expansion carriers (HDGECs) and their partners to fit their needs and expectations. METHODS: This article describes the qualitative human-centered design process and first evaluations of the Huntington Support App prototype: a web-app aimed to support the quality of life (QoL) of HDGECs and their partners in Europe. Prospective end-users, i.e., HDGECs, their partners, and healthcare providers (HCPs), from different countries were involved throughout the development process. Through interviews, we captured people's experiences with the disease, quality of life (QoL), and eHealth. We translated their stories into design directions that were further co-designed and subsequently evaluated with the user groups. RESULTS: The resulting prototype centralizes clear and reliable information on the disease, HD-related news and events, as well as direct contact possibilities with HCPs via an online walk-in hour or by scheduling an appointment. The app's prototype was positively received and rated as (very) appealing, pleasant, easy to use and helpful by both HDGECs and partners. DISCUSSION: By involving end-users in every step, we developed a healthcare app that meets relevant needs of individuals affected by HD and therefore may lead to high adoption and retention rates. As a result, the app provides low-threshold access to reliable information and specialized care for HD in Europe. A description of the Huntington Support App as well as implications for further development of the app's prototype are provided.
- Publikační typ
- časopisecké články MeSH
VÝCHODISKA. Skutečnost, že stres hraje významnou roli jako prekurzor drogové závislosti a relapsů (dlouhodobé pozorování v rámci praxe v kontaktním centru Walhalla v Olomouci a v doléčovacím centru Sananim v Praze). CÍLE: Cílem práce je specifikovat charakter stresujících situací a zjistit strategie zvládání stresu, jež užívají klienti kontaktního a doléčovacího centra. METODY: Použitými metodami získávání dat jsou kvadrant klasifikace stresujících situací, dotazník strategií zvládání stresu SVF 78 a ohniskové skupiny s pracovníky příslušného kontaktního a doléčovacího centra. SOUBOR: První výzkumný soubor tvoří 10 klientů kontaktního centra. Jedná se o dlouhodobé injekční uživatele pervitinu, kteří zároveň využívají služeb kontaktního centra Walhalla v Olomouci. Druhý výzkumný soubor se skládá z 10 klientů doléčovacího centra - ambulantního programu i chráněného bydlení. Jedná se o bývalé uživatele návykových látek, kteří nyní po absolvování léčby v psychiatrické léčebně či terapeutické komunitě abstinují. VÝSLEDKY: Participanti identifikují především dlouhodobé stresující situace klienty kontaktního centra neovlivnitelné, např. partnerské a mezilidské problemy, sociální situace uživatele drog či nakupení více stresorů v čase. Klienti doléčovacího centra identifikují situace ovlivnitelné (vzhledem k jejich náhledu), zejména zátěž \i práci a rodině. Klienti podle výsledků užívají strategie negativní jako únik, rezignaci, perseveraci a sebeobviňování. Chybí jim pozitivní strategie kontroly. ZÁVĚR: S fenoménem stresu a jeho zvládání je tedy zapotřebí v příslušných nařízeních dále pracovat. Pracovníci by se měli zaměřit na pozitivní přístup (obracet hrozbu ve výzvu), na podporu vlastních kompetencí klientů v boji se zátěží, společně s klienty hledat jejich oblíbenou činnost jako náhradní uspokojení za drogu, posilovat jejich sebedůvěru a opakovat zvládání rizikových situací.
BACKGROUND : Stress is a significant antecedent of drug addiction and relapse (results of long-term observation as part of internships in the Walhalla drop-in centre in Olomouc and the Sananim aftercare centre in Prague). AIMS: The aim of the paper is to specify the character of stressful situations and detect the coping strategies used by clients of a drop-in and an aftercare centre. METHODS: The research methods included a stressful situation classification quadrant, the SVF 78 coping strategies questionnaire, and focus groups with workers of the relevant drop-in and aftercare centres. SAMPLE: The first research sample comprised 10 clients of a drop-in centre, long-term intravenous drug users who use the services of the Walhalla drop-in centre in Olomouc. The second research sample consisted of 10 clients of an aftercare centre, enrolled in both its outpatient programme and its sheltered housing project. They are ex-users who abstain after therapy in a psychiatric hospital or a therapeutic community. RESULTS: The participants mainly identified long-term stressful situations; the clients of the drop-in centre identified uncontrollable situations, such as partnership and interpersonal problems, the social circumstances of drug users, and the accumulation of multiple stressors over time. The clients of the aftercare centre identified controllable situations (given the perspective), especially strain at work and/or in their families. They tend to use negative coping strategies, such as avoidance, resignation, perseverance, and feelings of guilt. They lack positive control strategies. CONCLUSIONS: The relevant organisations should incorporate the issue of stress and the respective coping strategies into their further work with clients. Practitioners should concentrate on a positive approach (to turn a threat into a challenge), support clients’ self-efficacy in dealing with stress, help them find their favourite leisure activities as a substitute gratification for a drug, reinforce their selfconfidence, and practice coping strategies.
Článek je členěn do čtyř částí. První dvě popisují aktuální situaci na drogové scéně v ČR, konkrétně počty uživatelů a zdravotní důsledky užívání nelegálních drog. Třetí část textu navazuje výkladem o systému péče o drogové uživatele a na závěr prezentujeme dostupné možnosti farmakoterapie a praktické péče o uživatele nelegálních drog. Charakter a rozsah příspěvku neumožňuje detailnější analýzu situace, omezíme se tedy na základní charakteristiky drogové problematiky a hlavní principy péče o uživatele drog.
The following text is divided into four parts. The first two describe the current situation at the drug scene in the Czech Republic, namely the numbers of users and health consequences of illicit drug use. Part three of the text deals with the system of care of drug users, and, in conclusion, the available pharmacotherapeutic options and practical care of illicit drug users are presented. The character and extent of the paper does not allow for a more detailed analysis of the situation; thus, the basic features of the drug issues and the main principles of care of drug users will only be addressed.
- MeSH
- centra pro terapii drogových závislostí statistika a číselné údaje MeSH
- lidé MeSH
- nové syntetické drogy klasifikace zásobování a distribuce MeSH
- poruchy spojené s užíváním psychoaktivních látek epidemiologie MeSH
- uživatelé drog statistika a číselné údaje MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- přehledy MeSH
- Geografické názvy
- Česká republika MeSH
- MeSH
- centra pro terapii drogových závislostí statistika a číselné údaje MeSH
- kriminální chování MeSH
- lidé MeSH
- nové syntetické drogy MeSH
- obchodování s drogami * statistika a číselné údaje MeSH
- poruchy spojené s užíváním psychoaktivních látek * epidemiologie prevence a kontrola terapie MeSH
- uživatelé drog * statistika a číselné údaje MeSH
- Check Tag
- lidé MeSH
- Geografické názvy
- Česká republika MeSH
- MeSH
- centra pro terapii drogových závislostí statistika a číselné údaje MeSH
- kriminální chování MeSH
- lidé MeSH
- nové syntetické drogy MeSH
- obchodování s drogami * statistika a číselné údaje MeSH
- poruchy spojené s užíváním psychoaktivních látek * epidemiologie prevence a kontrola terapie MeSH
- uživatelé drog * statistika a číselné údaje MeSH
- Check Tag
- lidé MeSH
- Geografické názvy
- Česká republika MeSH
BACKGROUND: Despite the increasing use of remote measurement technologies (RMT) such as wearables or biosensors in health care programs, challenges associated with selecting and implementing these technologies persist. Many health care programs that use RMT rely on commercially available, "off-the-shelf" devices to collect patient data. However, validation of these devices is sparse, the technology landscape is constantly changing, relative benefits between device options are often unclear, and research on patient and health care provider preferences is often lacking. OBJECTIVE: To address these common challenges, we propose a novel device selection framework extrapolated from human-centered design principles, which are commonly used in de novo digital health product design. We then present a case study in which we used the framework to identify, test, select, and implement off-the-shelf devices for the Remote Assessment of Disease and Relapse-Central Nervous System (RADAR-CNS) consortium, a research program using RMT to study central nervous system disease progression. METHODS: The RADAR-CNS device selection framework describes a human-centered approach to device selection for mobile health programs. The framework guides study designers through stakeholder engagement, technology landscaping, rapid proof of concept testing, and creative problem solving to develop device selection criteria and a robust implementation strategy. It also describes a method for considering compromises when tensions between stakeholder needs occur. RESULTS: The framework successfully guided device selection for the RADAR-CNS study on relapse in multiple sclerosis. In the initial stage, we engaged a multidisciplinary team of patients, health care professionals, researchers, and technologists to identify our primary device-related goals. We desired regular home-based measurements of gait, balance, fatigue, heart rate, and sleep over the course of the study. However, devices and measurement methods had to be user friendly, secure, and able to produce high quality data. In the second stage, we iteratively refined our strategy and selected devices based on technological and regulatory constraints, user feedback, and research goals. At several points, we used this method to devise compromises that addressed conflicting stakeholder needs. We then implemented a feedback mechanism into the study to gather lessons about devices to improve future versions of the RADAR-CNS program. CONCLUSIONS: The RADAR device selection framework provides a structured yet flexible approach to device selection for health care programs and can be used to systematically approach complex decisions that require teams to consider patient experiences alongside scientific priorities and logistical, technical, or regulatory constraints.
- MeSH
- lidé MeSH
- technologie MeSH
- telemedicína * MeSH
- zdravotnický personál MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- MeSH
- centra pro terapii drogových závislostí statistika a číselné údaje MeSH
- lidé MeSH
- opiátová substituční terapie MeSH
- povinné programy statistika a číselné údaje MeSH
- průzkumy a dotazníky MeSH
- sbírání vzorku moči MeSH
- toxikologie statistika a číselné údaje MeSH
- uživatelé drog statistika a číselné údaje MeSH
- Check Tag
- lidé MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- MeSH
- buprenorfin aplikace a dávkování terapeutické užití MeSH
- centra pro terapii drogových závislostí organizace a řízení MeSH
- lidé MeSH
- methadon aplikace a dávkování terapeutické užití MeSH
- poruchy spojené s užíváním psychoaktivních látek farmakoterapie MeSH
- praktičtí lékaři * MeSH
- průzkumy a dotazníky využití MeSH
- uživatelé drog * psychologie MeSH
- Check Tag
- lidé MeSH
