- MeSH
- Health Care Reform MeSH
- Registries MeSH
- Data Collection MeSH
- Quality Indicators, Health Care MeSH
- Publication type
- Database MeSH
- Geographicals
- Estonia MeSH
Scandinavian journal of work, environment & health, ISSN 0355-3140 vol. 28, suppl. 1, 2002
88 s. : tab. ; 30 cm
- MeSH
- Risk Assessment MeSH
- Neoplasms MeSH
- Occupational Diseases MeSH
- Occupational Exposure MeSH
- Occupational Medicine MeSH
- Risk Factors MeSH
- Conspectus
- Lékařské vědy. Lékařství
- NML Fields
- pracovní lékařství
- onkologie
- NML Publication type
- studie
- MeSH
- Registries * MeSH
- Publication type
- Research Support, Non-U.S. Gov't MeSH
- Geographicals
- Czech Republic MeSH
AIMS: Rhythm control management in patients with atrial fibrillation (AF) may be unequal across Europe. The aim of this study was to investigate how selective the patient cohort referred for AF ablation is, as compared to the general AF population in Europe, and to describe the governing mechanisms for such selection. METHODS AND RESULTS: Descriptive comparative statistical analyses of the baseline characteristics were performed between the cohorts of Atrial Fibrillation Ablation Long-Term (ESC EORP AFA-LT) registry, designed to provide a picture of contemporary real-world AF ablation, and the AF population from the AF-General (ESC EORP AF-Gen) pilot registry. Data collection was performed using a web-based system. In the AFA and in the Atrial Fibrillation General (AFG) pilot registries, 3593 and 3049 patients were enrolled, respectively. Patients who underwent AF ablation were younger, more commonly male, and had significantly less comorbidities. Atrial Fibrillation Ablation patients often presented without comorbidities, resulting in a lower risk of stroke (CHA2DS2-VASc ≥5: 2.9% vs. 24.5%, all P < 0.001) and bleeding (HAS-BLED ≥2: 8.5% vs. 40.5%, P < 0.001) but with European Heart Rhythm Association (EHRA) scores >1 and more prevalent AF-related symptoms such as palpitations, fatigue, and weakness (all P < 0.001) as compared to the general AF patients. Atrial Fibrillation Ablation patients were significantly more often male, had higher left ventricular ejection fraction (59.5% vs. 52.4%) and smaller left atrial size on echocardiogram (P < 0.001 each). CONCLUSION: The comparison of the patient cohorts in the AFA and AFG registries showed that AF ablation in European clinical practice is mostly performed in relatively young, symptomatic and relatively healthy patients.
- MeSH
- Anticoagulants MeSH
- Stroke * MeSH
- Atrial Fibrillation * diagnosis epidemiology surgery MeSH
- Ventricular Function, Left MeSH
- Catheter Ablation * adverse effects MeSH
- Humans MeSH
- Registries MeSH
- Risk Factors MeSH
- Stroke Volume MeSH
- Check Tag
- Humans MeSH
- Male MeSH
- Publication type
- Journal Article MeSH
- Research Support, Non-U.S. Gov't MeSH
- Geographicals
- Europe MeSH
BACKGROUND: Pressure ulcers/pressure injuries (PUs/PIs) relate to decreasing quality of life, prolonged hospitalisation, the increased economic cost of care, and increased mortality. That's why this study focused on one of the mentioned factors - mortality. OBJECTIVES: The study analyses national data in the Czech Republic to map the mortality phenomenon comprehensively based on data from national health registries. METHOD: The retrospective, nationwide cross-sectional data analysis of data collected by the National Health Information System (NHIS) has been provided in the period 2010-2019 with a special focus on 2019. Hospitalisations with PUs/PIs were identified by reporting L89.0-L89.9 diagnosis as a primary or secondary hospitalisation diagnosis. We also included all the patients who died in the given year with an L89 diagnosis reported in 365 days prior the death. RESULTS: In 2019, 52.1% of patients with reported PUs/PIs were hospitalised, and 40.8% were treated on an outpatient basis. The most common underlying cause of death mortality diagnosis (43.7%) in these patients was the diseases of the circulatory system. Patients who die in a healthcare facility while hospitalised with an L89 diagnosis generally have a higher category of PUs/PIs than persons who die outside a healthcare facility. CONCLUSION: The proportion of patients dying in a health facility is directly proportional to the increasing PUs/PIs category. In 2019, 57% of patients with PUs/PIs died in a healthcare facility, and 19% died in the community. In 24% of patients who died in the healthcare facility, PUs/PIs were reported 365 days before the death.
- MeSH
- Pressure Ulcer * epidemiology MeSH
- Suppuration MeSH
- Quality of Life MeSH
- Humans MeSH
- Cross-Sectional Studies MeSH
- Retrospective Studies MeSH
- Check Tag
- Humans MeSH
- Publication type
- Journal Article MeSH
- Geographicals
- Czech Republic MeSH
- MeSH
- Epidemiology statistics & numerical data MeSH
- Quality of Health Care standards utilization MeSH
- Humans MeSH
- Evidence-Based Medicine methods organization & administration trends MeSH
- Neoplasms epidemiology MeSH
- Hospital Information Systems utilization MeSH
- Registries standards statistics & numerical data MeSH
- Risk Factors MeSH
- Data Collection methods trends utilization MeSH
- Check Tag
- Humans MeSH
- Geographicals
- Czech Republic MeSH
182 s. : il.
- Conspectus
- Patologie. Klinická medicína
- NML Fields
- epidemiologie
- onkologie
Chronic kidney disease (CKD) in children, from birth to late adolescence, is a unique and highly challenging condition that requires epidemiological research and large-scale, prospective cohort studies. Since its first launch in 2007, the European Society for Paediatric Nephrology/European Renal Association (ESPN/ERA) Registry has collected data on patients on kidney replacement therapy (KRT). However, slowing the progression of CKD is of particular importance and thus the possibility to extend the current registry dataset to include patients in CKD stages 4-5 should be a priority. A survey was sent to the national representatives within the ESPN/ERA Registry to collect information on whether they are running CKD registries. All the representatives from the 38 European countries involved in the ESPN/ERA Registry participated in the survey. Eight existing CKD registries have been identified. General characteristics of the national registry and detailed data on anthropometry, laboratory tests and medications at baseline and at follow-up were collected. Results provided by this survey are highly promising regarding the establishment of an ESPN CKD registry linked to the ESPN/ERA KRT registry and subsequently linking it to the ERA Registry with the same patient identifier, which would allow us to monitor disease progression in childhood and beyond. It is our belief that through such linkages, gaps in patient follow-up will be eliminated and patient-centred outcomes may be improved.
- Publication type
- Journal Article MeSH
Cíl: Cílem studie bylo analyzovat výsledky mezinárodního průzkumu zaměřeného na proces hodnocení prevalence, prevence a sledování pacientů s dekubity. Snahou bylo zjistit, zda data sledovaná na národní úrovni lze využít pro mezinárodní srovnávání. Metodika a soubor: Multicentrická deskriptivní mezinárodní studie orientovaná na zjištění prevalence, prevence a sledování pacientů s dekubity mezi zástupci mezinárodních společností zaměřených na péči o rány a dekubity (Evropské společnosti pro léčbu ran (EWMA) a Evropského poradního panelu pro otázky dekubitů (EPUAP)). Výsledky: V průzkumu odpovědělo 16 % z oslovených zemí spolupracujících s EWMA a 10 % kontaktních osob. Ze spolupracujících zemí s EPUAP odpovědělo 71 % zemí a 47 % kontaktních osob. Závěr: Většina respondentů odpověděla, že nemají národní registr pro sledování dekubitů, ale na lokální úrovni sledují obdobná data. Nedostatek strukturovaně sledovaných údajů na národní úrovni ovlivňuje možnosti využití dat také na mezinárodní úrovni. Protože stávající data z dosavadních zdrojů v oblasti managementu dekubitů jsou omezená a nekonzistentní, je vhodné zavedení společných minimálních údajů, které by měly být sledovány na mezinárodní úrovni.
Aim: The aim of this study was to analyse the results from an international survey on prevalence, prevention, and follow-up of patients with pressure ulcers, with a focus on exploring whether a common minimum data set from national quality registries could be used in an international setting. Material and methods: A cross-sectional descriptive survey design was used to obtain data from national PU registries. A questionnaire based on a previously performed review of relevant literature was sent to national experts in the field of wound management (European Wound Management Association; EWMA and European Pressure Ulcer Advisory Panel; EPUAP representatives). Results: The response rates to the international survey were 16% (countries) and 10% (contact persons) within EWMA and 71% (countries) and 47% (contact persons) within EPUAP. Conclusion: The majority of respondents stated that they did not have national registries for PU, but that they registered similar data on a local level. A lack of national data seriously impairs efforts to develop an international research network on patients with PU and to share data and expert knowledge and skills. Although existing data from registries or administrative health records on pressure ulcer management are scarce and inconsistent, the task of establishing a common minimum data set in an international setting seems worthwhile.
- MeSH
- Databases, Factual MeSH
- Pressure Ulcer * epidemiology prevention & control therapy MeSH
- Wound Healing MeSH
- Quality of Health Care standards MeSH
- Humans MeSH
- International Cooperation * MeSH
- Surveys and Questionnaires MeSH
- Health Care Surveys MeSH
- Registries * standards MeSH
- Quality Control MeSH
- Outcome and Process Assessment, Health Care standards MeSH
- Check Tag
- Humans MeSH
- Publication type
- Multicenter Study MeSH
- Geographicals
- Europe MeSH
